Autism-Adjacent, part One


I believe I’ve made a few references to my mental health battles here. Maybe not much specifically, but little hints here and there. Some might have assumed these were jokes but I assure you, they’re not. 🙂 With that in mind, I figure I might want to actually explain what that journey has entailed.

I can’t believe I made it this far into my life without therapy, honestly. The first time I saw my primary care doctor, which is going on 6 or 7 years now, she immediately had the nurse drag in the EKG chart and hook me up; my heart was racing that badly. Panic attack? Likely, only I didn’t know what that was. I mean, how do you explain what that feels like to someone who has never had one? They’re all so individual or at least can be. I now know that one of my reactions is a throbbing in my lower back, and sometimes the entire world turns yellow. No one’s ever said anything about panic attacks like that to me.

I thought it was a heart attack. Kinda glad it was “only” a panic attack.

One of the many traumas in my life that I’ve had to deal with is one I’m sure many, many women will relate to. Horrible doctors that minimally don’t listen and maximally berate you, or worse. I hadn’t had a decent doctor who listened in ages at this point, aside from the doctor at that practice who had moved on and abandoned me, and I’d only seen him for about 2 years.

Needless to say, when my PCP got the test results from the EKG and I broke down in tears, she sat down to talk to me. I bawled and explained that I felt like I had some sort of medical PTSD. When I first attempted to get my neuropathy diagnosed (I was pretty sure by this point I knew what it was), the first doctor didn’t even look at my feet or send me to a specialist or anything but write me a couple of prescriptions. The second doctor had told me there was a 40% chance we’d never know what was wrong with my feet, but when I asked about a specialist, she said there wasn’t any need for that.

Right.

But finally, I found a doctor (female, of course) who was listening to me. Not only did she write me my first prescription for anxiety medication, and send me to a therapist, but she also sent me immediately to someone when I complained of menstrual issues. The absolutely WONDERFUL (female) doctor I saw for that caught the endometrial cancer and sent me to a WONDERFUL gynecological oncologist who got me in for surgery 5 days after I saw her with the diagnosis. 5 years later, I’m still clean, and I hope to stay that way.

Long way around, I’m sure, but that’s the background for how I finally got help.

As you can see, and probably know, or at least likely can understand, some of my issues were caused by direct circumstances. Attending what should have been a fairly normal, mainstream church during a particularly fervent Charismatic Movement messed me up, sure. But when combined with an authoritarian father who was really a Baptist in Episcopalian clothes and my innate need for his approval, well, it did double damage. They either refer to that as religious trauma or sometimes religious PTSD. I’ve got issues, like many people, because of bullying throughout my public-school career. Anxiety, just a touch of OCD, social anxiety to the point of avoidant personality disorder, and a little privacy issue. Just a little. Yeah, there’s event-based damage that I can track back, and have traced some of it.

But then, there seem to be issues that were just always there. I wrote on the wall inside my mom’s closet “why doesn’t anyone love me” when I was six. I remember getting stomachaches and not wanting to go to school in kindergarten. I used to hide in my closet to be alone, to the point my parents would freak out and start looking for me. Something was going on genetically, I assumed.

After a false start with a therapist who sucked, at least for me, I ended up with the person I see now who is phenomenal. Perfect for me. Grew up in the same town as I did, even knew some of the same people although she’s a few years older. Her sister was a Wiccan and into ghost hunting, so she knows what I’m talking about in the largest and most important parts of my life. Also, that same sister who unfortunately departed the mortal plane too soon, was trans. She gets my life, my point-of view. I don’t worry about judgment. Phew.

So, the time came when I had a question to ask her. I’d been on TikTok (bad idea, btw), and seen many, many, many people discussing being autistic. I’d picked up a lot, but at the same time many of those people were self-diagnosed. No judgment there, because I understand how hard it is for most people to get therapy and treatment for their mental health. Self-diagnosis is often all they’ve got.

At the same time, I wasn’t sure then, how accurate they were. I had so many “symptoms” that were similar to autism. SO FREAKING MANY!!! Hyperfixations, anyone? I’ve got my share and then some. I’ve been studying cults and religion since grade school. If you want a good genealogist, find someone with a hyperfixation, you won’t regret it. I am amazing at research. If I want to know something, I will not stop until I do. All the food I hate is because of the texture. I will not wear polyester, and you can’t make me. The feel of that is just…slimy…I’m cringing even thinking about it. And of course, there’s more.

When I brought that up to my therapist she smiled broadly, which did worry me slightly, I’ll admit. But she said, “you’re ready for your diagnosis.”

OMG, I’m over 1000 words already! Since attention spans are so small these days, I guess I’ll have to put the rest in a part two. See you there!