Autism-Adjacent, part One


I believe I’ve made a few references to my mental health battles here. Maybe not much specifically, but little hints here and there. Some might have assumed these were jokes but I assure you, they’re not. 🙂 With that in mind, I figure I might want to actually explain what that journey has entailed.

I can’t believe I made it this far into my life without therapy, honestly. The first time I saw my primary care doctor, which is going on 6 or 7 years now, she immediately had the nurse drag in the EKG chart and hook me up; my heart was racing that badly. Panic attack? Likely, only I didn’t know what that was. I mean, how do you explain what that feels like to someone who has never had one? They’re all so individual or at least can be. I now know that one of my reactions is a throbbing in my lower back, and sometimes the entire world turns yellow. No one’s ever said anything about panic attacks like that to me.

I thought it was a heart attack. Kinda glad it was “only” a panic attack.

One of the many traumas in my life that I’ve had to deal with is one I’m sure many, many women will relate to. Horrible doctors that minimally don’t listen and maximally berate you, or worse. I hadn’t had a decent doctor who listened in ages at this point, aside from the doctor at that practice who had moved on and abandoned me, and I’d only seen him for about 2 years.

Needless to say, when my PCP got the test results from the EKG and I broke down in tears, she sat down to talk to me. I bawled and explained that I felt like I had some sort of medical PTSD. When I first attempted to get my neuropathy diagnosed (I was pretty sure by this point I knew what it was), the first doctor didn’t even look at my feet or send me to a specialist or anything but write me a couple of prescriptions. The second doctor had told me there was a 40% chance we’d never know what was wrong with my feet, but when I asked about a specialist, she said there wasn’t any need for that.

Right.

But finally, I found a doctor (female, of course) who was listening to me. Not only did she write me my first prescription for anxiety medication, and send me to a therapist, but she also sent me immediately to someone when I complained of menstrual issues. The absolutely WONDERFUL (female) doctor I saw for that caught the endometrial cancer and sent me to a WONDERFUL gynecological oncologist who got me in for surgery 5 days after I saw her with the diagnosis. 5 years later, I’m still clean, and I hope to stay that way.

Long way around, I’m sure, but that’s the background for how I finally got help.

As you can see, and probably know, or at least likely can understand, some of my issues were caused by direct circumstances. Attending what should have been a fairly normal, mainstream church during a particularly fervent Charismatic Movement messed me up, sure. But when combined with an authoritarian father who was really a Baptist in Episcopalian clothes and my innate need for his approval, well, it did double damage. They either refer to that as religious trauma or sometimes religious PTSD. I’ve got issues, like many people, because of bullying throughout my public-school career. Anxiety, just a touch of OCD, social anxiety to the point of avoidant personality disorder, and a little privacy issue. Just a little. Yeah, there’s event-based damage that I can track back, and have traced some of it.

But then, there seem to be issues that were just always there. I wrote on the wall inside my mom’s closet “why doesn’t anyone love me” when I was six. I remember getting stomachaches and not wanting to go to school in kindergarten. I used to hide in my closet to be alone, to the point my parents would freak out and start looking for me. Something was going on genetically, I assumed.

After a false start with a therapist who sucked, at least for me, I ended up with the person I see now who is phenomenal. Perfect for me. Grew up in the same town as I did, even knew some of the same people although she’s a few years older. Her sister was a Wiccan and into ghost hunting, so she knows what I’m talking about in the largest and most important parts of my life. Also, that same sister who unfortunately departed the mortal plane too soon, was trans. She gets my life, my point-of view. I don’t worry about judgment. Phew.

So, the time came when I had a question to ask her. I’d been on TikTok (bad idea, btw), and seen many, many, many people discussing being autistic. I’d picked up a lot, but at the same time many of those people were self-diagnosed. No judgment there, because I understand how hard it is for most people to get therapy and treatment for their mental health. Self-diagnosis is often all they’ve got.

At the same time, I wasn’t sure then, how accurate they were. I had so many “symptoms” that were similar to autism. SO FREAKING MANY!!! Hyperfixations, anyone? I’ve got my share and then some. I’ve been studying cults and religion since grade school. If you want a good genealogist, find someone with a hyperfixation, you won’t regret it. I am amazing at research. If I want to know something, I will not stop until I do. All the food I hate is because of the texture. I will not wear polyester, and you can’t make me. The feel of that is just…slimy…I’m cringing even thinking about it. And of course, there’s more.

When I brought that up to my therapist she smiled broadly, which did worry me slightly, I’ll admit. But she said, “you’re ready for your diagnosis.”

OMG, I’m over 1000 words already! Since attention spans are so small these days, I guess I’ll have to put the rest in a part two. See you there!

The Beginning


As with most people in the US of A, I was raised in a Christian household. Not my choice.

Like so many of us in the US of A who were raised in a Christian household, it messed with my mind. More than I ever knew, honestly. At the age of 52 my primary care doctor diagnosed me with anxiety when I broke down in her office. Again. The very first time I’d seen her, three years or so prior, I’d burst into tears and had a heart rate high enough that they slapped an EKG onto me to check my heart.

That was fun.

I was surprised and relieved all at the same time. She gave me a prescription and recommended therapy. I am happy to say that all the above is covered by our health insurance, a privilege not everyone in the US of A has. I am taking FULL advantage of this as long as I possibly can. After a false start with a therapist who did not fit me at all, my second try was a winner and I’m now actually starting to put myself back together again. Its been a long, hard road. Turns out that aside from the generic, garden variety social anxiety and the super-special avoidant personality disorder that comes up now-and-then, I also am the proud owner of some lovely PTSD, straight from Christianity.

And most of the damage was self-inflicted.

My major anxiety is related to a need for approval, love, acceptance. The usual, I suppose. This includes a need for my father’s approval. My father’s father was a Baptist minister, his mom played the organ for their children’s ministry. He converted to ECUSA when he and my mother married. Sweet, I know, but he never did lose the fire-and-brimstone edge to him .Now, they’re both Catholic and things got weirder. But we’ll get there eventually.

As explained to me by my therapist, we humans start to develop our own moral system somewhere around the age of 12 or so. I smothered mine. I forced my square peg into the Christian round hole (why does that sound mildly dirty?) for years. Forcing myself to accept the good girl myth and all the restrictions that come with it. I did some serious damage to my own psyche as a result. Could I blame my parents? Sure, plenty of people do. The truth is, however, that I’m complicit in this, and I know it. I own it.

At the height of my involvement with the Church, I was an acolyte (“altar girl”), a member of Junior Daughters of the King, I assisted Sunday School teachers (until they figured out I was too young), attended youth group weekly, and Bible Discipleship once a week. Fairly often, my brothers and I would be called in to assist at the early services when other acolytes weren’t available. On the most involved week, I would be at the 7:30 am service as an acolyte, I would be working for Jr. Daughters to tend the altar between services and lay out vestments, then down into the nursery to attend to that for the 9:00 service, again, for junior daughters, then I would attend the 10:30 or 11:25 services simply because I hadn’t sat through services myself yet. After lunch, I’d be at the church plenty early for youth group, and then Wednesday nights I’d return for Bible Discipleship. And that doesn’t include classes for my Confirmation.

I was involved.

Not all of that experience was bad. There were some experiences that have stuck with me throughout the years. At the same time, the damage I did to myself, the emotional and psychological damage that was done to me by both other church attendees and my own father are things I now have to deal with. You just can’t keep up with those expectations and live under a constant fear of hell without some damage.

When I was seventeen, the dam finally broke and broke with style although I hid it well. I still hide it well. My parents, now in their 80s, have no real concept of how far from Christian theology I have strayed. Everyone else in the world knows, but not my parents. Not because I’m seeking their approval still but because I love them. My mother isn’t as strict of a Christian as my father is still, to this day, and we’re extremely close. I love them both. They are true believers, and have every right to their own beliefs. But I couldn’t live my life happily if I thought they were on their knees praying for my soul every day of their lives. I will save them the anxiety and worry that I carry, I want them to enjoy these last years on earth.

There will be time enough for them to find out when they’re no longer physical beings.

This was originally published on my soon-to-be deleted blog W.I.T. on March 26, 2023